WELCOME TO THE WEBSITE OF THE

AUSTRALIAN KABUKI SYNDROME ASSOCIATION INC.

 
 

Welcome and thank you for viewing our newly created web site The web site is under construction and some areas of content are still to be finalized. New segments will be entered as they are developed. We are very proud to have been able to have the web site so soon in our early development as an Association

The Kabuki community is a small group, spread throughout Australia and this web site has been primarily produced for the people with Kabuki syndrome and their family to reduce isolation, provide support and a source for communication with interested bodies.

The web site will increase the awareness of this rare, little known condition and provide a venue for interested persons seeking information on Kabuki syndrome and the function of the Association.

Contact us with any feed back or items you think should be included that will enhance the web site thus giving the best possible service to the people with Kabuki syndrome.

The Association has been developing since its conception in September 2006 and over the first 18 months has laid the foundation to function effectively as an organization and working toward becoming a registered non-profit charity.

THANK YOU
The Management Committee and Members of the Association would like to thank all the people who have contributed to the Association and supported the Kabuki syndrome families during this early stage of the Associations development.

For the implementation of the web site we thank the Rotary Club of Adelaide West, South Australia for their monetary support and Hocking Communications Adelaide South Australia for donating their time in creating the web site

 

   

This information is not intended to be used for diagnosis / management for Kabuki syndrome or any related condition. Should you have any concerns re the health of yourself or a family member, consult your family doctor or your local hospital. The Association assumes no responsibility for information from linked sources. Views, expressed from other sources, are not necessary the views of the Association.

TO SUPPORT AND MAKE A DIFFERENCE

 

 

       


©
AUSTRALIAN KABUKI SYNDROME ASSOCIATION INC.2008