Welcome, and thank you for viewing our web site. The web site is under construction and some areas of content are still to be finalized. New segments will be entered as they are developed. We are very proud to have been able to have the web site so soon in our early development as an Association
The Kabuki community is a small group, spread throughout Australia and this web site has been primarily produced for the people with Kabuki syndrome and their family to reduce isolation, provide support and a source for communication with interested bodies.
Secondly, the web site will increase the awareness of this little known, rare condition and provide a venue for interested persons seeking information on Kabuki syndrome and the function of the Association. To date, this initiative is proving to be an asset with persons from over 70 countries viewing the site each month.
Contact us with any feed back or items you think should be included that will enhance the web site thus giving the best possible service to the people with Kabuki syndrome, their family and interested persons.
The Association is an incorporated body, progressing in its development since its conception in September 2006 as effective non profit charity organization
The Management Committee and Members of the Association would like to thank all the people who have contributed to the Association and support the families with a child / young adult with the condition of Kabuki syndrome.
For the implementation of the web site we thank the Rotary Club of Adelaide West, South Australia for their monetary support and Hocking Communications Adelaide South Australia for donating their time in creating and maintaining the web site.